Heart failure impacts more than 60 million people worldwide, and even more are indirectly affected by it, knowing or caring for a relative or friend with the disease. Bringing together people affected by heart failure as a community can be a powerful way to drive change ensuring the patient voice has a global leadership position.
It is a unique community and valuable resource for both patient groups who want to strengthen their heart failure advocacy, whilst learning and sharing with other members of iHHub, or as a directory for people with heart failure, their carers, families and healthcare professionals, who want to engage with their local country-level patient group.
iHHub works to raise awareness, educate, support and ultimately improve the lives of people living with, or affected by, heart failure.
iHHub supports and works with patient groups in countries around the world to raise awareness and increase understanding of heart failure by:
If you have heart failure, or care for someone who does, you first need to become a member of a patient group that is connected with iHHub.
To see if there is a member patient group in your country, check out the iHHub member map. Here, you can find information about members and their contact details so you can get in touch with them and ask about joining.
Alternatively, if you are a member of a patient group that isn’t already a member of iHHub, why not suggest your group join? Get in touch with iHHub here for more information on how to go about this.
Worldwide, the work of patient groups is invaluable for raising awareness, educating and supporting people affected by heart failure. By patient groups joining together through iHHub, they can combine their strengths to create a unified, and more powerful voice.