Our friends at iHHub - Uniting against heart failure

Heart failure impacts more than 60 million people worldwide, and even more are indirectly affected by it, knowing or caring for a relative or friend with the disease.[1] Bringing together people affected by heart failure as a community can be a powerful way to drive change ensuring the patient voice has a global leadership position.

 

What is iHHub?

  • iHHub is the first organization to bring together heart failure patient groups from across the world.
  • It was initially founded by members of eight patient groups from North America, Latin America, Europe, the Middle East and Africa.
  • iHHub now has a rapidly growing membership of 35 patient groups, from more than 20 countries, spanning four continents.[2]

It is a unique community and valuable resource for both patient groups who want to strengthen their heart failure advocacy, whilst learning and sharing with other members of iHHub, or as a directory for people with heart failure, their carers, families and healthcare professionals, who want to engage with their local country-level patient group.[2]

iHHub works to raise awareness, educate, support and ultimately improve the lives of people living with, or affected by, heart failure.

 

What do iHHub do?

 

 

iHHub supports and works with patient groups in countries around the world to raise awareness and increase understanding of heart failure by:

  • Sharing useful tools and information
  • Sourcing practical advice from experts such as healthcare organizations or politicians
  • Linking members to each other so they can share their first-hand experience and advice

 

 

I want to be a part of iHHub! How do I join?

 

 

If you have heart failure, or care for someone who does, you first need to become a member of a patient group that is connected with iHHub.

To see if there is a member patient group in your country, check out the iHHub member map. Here, you can find information about members and their contact details so you can get in touch with them and ask about joining.

Alternatively, if you are a member of a patient group that isn’t already a member of iHHub, why not suggest your group join? Get in touch with iHHub here for more information on how to go about this.

Worldwide, the work of patient groups is invaluable for raising awareness, educating and supporting people affected by heart failure. By patient groups joining together through iHHub, they can combine their strengths to create a unified, and more powerful voice.

 

More tools and resources for heart failure patients

 

1) Global Burden of Disease Study 2013 Collaborators. Global, regional, and national incidence, prevalence, and years lived with disability for 301 acute and chronic diseases and injuries in 188 countries, 1990-2013: a systematic analysis for the Global Burden of Disease Study 2013, Lancet 2015
2) About Us. iHHub website. http://www.ihhub.org/about-us/. Accessed October 2016